Let Me Tell You 'Bout My Best Friend
My niece, Addy, and I have always been like two peas in a pod. Maybe it's our love for all things girly while also being total outdoor nature lovers, or the fact that we can turn any situation into a dance party. Either way, she is one of the most determined, insightful, happy and caring kids who loves to make new friends, constantly learn new things, and challenge herself, while keeping a big smile on her face that we all know and love.
However, things are a little different for Addy on a day-to-day basis. As you can see in the picture, she has a walker which she completely relies on. Addy needs this to get around, as she has 4H Leukodystrophy. While she doesn't let much get in her way of living her life with her mom, Jenny, dad, Brent, and brother Jax, her limitations only push her and her family to make that much more out of life. While it is a rare disease with little research on the condition, it's life changing for those affected and their loved ones. If you aren't familiar with 4h Leukodustrophy, there is an overview of the condition below. We all know that medical fees can be detrimental to one's financial state, however crucial the care and equipment may be to keeping someone healthy and comfortable. To help my Beautiful Niece Addy and her wonderful family as well as other affected families in need, please consider donating to Team Addy & The Yaya Foundation via the links at the bottom of this page.
From our Family to Yours, Thank you.
- 4H Leukodystrophy support, information & updates
-The Yaya Foundation is dedicated to finding treatments and a cure for 4H Leukodystrophy by funding and connecting critical research efforts and to providing education, support and advocacy for children and families living with 4H Leukodystrophy today.